Lessons for US Regulators: Democratising clinical genomics while protecting data privacy

From: European Pharmaceutical Review

Author(s): Jurgi Camblong (CEO, Sophia Genetics)

The concerns that surrounded the deal where the UK’s National Health Service (NHS) gave Google’s Deep Mind division access to healthcare data of up to 1.6 million English patients remind us of the importance of trust in patient data management.

In fact, if all stakeholders advocate for data and knowledge sharing, particularly in the fast growing field of clinical genomics, data privacy and protection have never been so important. Creating a collective intelligence and getting actionable insights to better diagnose and treat diseases is a priority, but who wants his or her data to be sold to banks or insurances and used to define credit rating or insurance premiums?

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